Can I tell you something? I have worried about David his entire life. And the guilt, so much guilt. At times it has been completely overwhelming. I’ve worried about his physical health–making sure he has nutritious foods, the right medicines in the correct doses, and doctors who take time to understand his unique needs, but I’ve also worried about his mental and emotional well-being. What is it like to be trapped inside a body that does not cooperate? David cannot speak with words. He cannot dress himself or prepare his own food. He depends on me for survival. I worried if I did not give David every single thing he needed, he would not be okay. It all depended on me—or so I believed.
This simply is not true.
David is not only okay, he is incredible. He is powerful. He is learning to communicate his needs and wants. He entertains himself and soothes himself when he is upset. He connects deeply with other people. He is genuinely happy and it’s not because of me. Yes, David needs extra help and attention. There are things he cannot do for himself. But his disability does not mean he is powerless. He does not need my pity.
{Can you see that spark?!}
Inside David’s heart there is a spark all his own. It shines brightly. It is what makes David, David. It is why other people connect so easily with him. It is how he connects to the God of the Universe. I am able to meet some of David’s needs, but I am not required to meet all of them. I am just one person. When situations arise where I am unable to meet David’s needs, God will provide a way. Either David will meet his own need or someone else will be there to help. David will be okay, I truly believe this.
It wasn’t just David I worried about. For so long I believed I was responsible for everyone else around me. It was my job to manage their thoughts and feelings. I believed somehow I could control the world around me. It all rested on my shoulders. It was my job, and mine alone, to create a beautiful home, raise kids who thrive and to nurture a marriage with deep connection.
There were days I would walk around in a fog. Other people’s thoughts and emotions crowded in around me to the point where I could barely breathe. It was a fog so thick, I could not see through it. I could not think straight. It was too messy. I could not make sense of it all. The fog was suffocating.
I tried to be needless and wantless and put myself last. I tried to be everything I thought I should be. I tried to say everything I thought I should say. I tried to prove I was lovable, I was enough, but I couldn’t do it. No matter how hard I tried, it never seemed to be enough.
I am learning I have nothing to prove. I am growing and beginning to believe I am lovable just as I am. In this process I found out something AMAZING.
When you get to a place where you understand that love and belonging, your worthiness, is a birthright and not something you have to earn, anything is possible. ~ Brené Brown
Inside my heart there is a spark. It’s the center of who I am. It is my truest, most beautiful self. This spark is my North Star and it is there to guide me. My North Star shines so bright it burns away the fog around me. My North Star is how I connect with the God of the Universe.
I hold this spark inside my heart.
My spark is what makes me, me.
My spark makes me beautiful.
My spark lights me up from the inside.
My spark has facets like a diamond.
My spark makes me curious, angry, sad and silly.
My spark makes me wonder and explore and ask questions.
My spark makes my feet stomp and my voice loud.
My spark makes me cry while heavy tears fall.
My spark makes my eyes twinkle and my mouth smile.
My spark is all mine.
And David’s spark is all his. It shines bright!
And your spark is all yours. You shine so very bright.
God has given each of us our own spark, our own North Star. I cannot tell you how to follow your North Star, just as you cannot tell me how to follow mine.
I cannot make my husband okay.
I cannot make my kids okay.
I cannot make my friends okay.
I can love them. I can listen to them. I can walk alongside them. But each of them must look to their own North Star to find their way.
Trust God from the bottom of your heart;
don’t try to figure everything out on your own.
Listen for God’s voice in everything you do,
everywhere you go;
He’s the one who will keep you on track.
Proverbs 3:5-6
I can feel my feelings, you can feel your feelings.
I can think my thoughts, you can think your thoughts.
I can say what I want and need, you can say what you want and need.
Each of us can be completely ourselves.
Each of us can look to our own North Star.
This where we find love and hope. This is where we find peace.
When I follow my North Star I will always be where I’m meant to be.
When you follow your North Star you will always be where you’re meant to be.
This is the meaning behind the *new* North Star necklace. Each handcrafted charm has an initial on one side and a Braille constellation on the reverse side. Your personalized initial is a sweet, gentle reminder to follow your North Star.
Create your own North Star Necklace here.
This is amazing and beautiful. May God bless you and your family always. Sending big love ❤️
Beautiful
Hi Lisa-I care for my adult DS sister Nancy. My Mom passed last year and worried all her life what would happen to Nancy even tho I reassured her everything would be fine. My Husband and I sold our house and moved in with her and I am so honored to care for this sweet spirit. Yes we have had a lot of challenges but things are going well 9 months in. Your article is so true and I wish my Mom could have released some of her worry and guilt before she passed. Thank you for your thoughts and your products.
Kathy
I loved reading this! It makes me look at a lot of things in my life differently Thank you for sharing
Lisa. This is beautiful. I cant wait to share it with my kids both at home and in my classroom when I work with severely emotionally disturbed kids they can really connect to these words I hope someday we get to reconnect in person I love that I get these glimpses of your family and you thanks for sharing your heart …Joi
Hi Lisa your post brought happy and even sad tears. I saw myself iits is as if you’re in my ? Lol. You know l am finally learning who l am now in my latter days. I see now that God loves me just the way I am so l am free to be me and not what everyone wants out of me. I am guarding my heart from all the stuff that doesn’t need to be there.. I appreciate your open hearted honesty ❤️ So glad l found you and can’t wait to get my lovely jewelry.. Gods blessings to you and your Family. David’s face shines so brightly with Gods love and his family so beautiful..?
Your “North Star” lights up my world! Love you David. I also love the new charms. So fun.
Such a beautiful post, filled with love, wonder, and discovery. What a blessed little boy to have been given you as his mother!